Fully recovered from ME/CFS: A Pole dancer's incredible recovery story

CFS Health
4 Mar 202463:08
EducationalLearning
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TLDRIn this inspiring episode of 'Recovery Success Stories by CFS Health,' Toby Morrison interviews Mara Men, a chronic fatigue syndrome (CFS) survivor who has made a remarkable recovery. Mara shares her harrowing journey from being bedridden and consumed by panic and anxiety to regaining control over her life. She discusses the importance of acceptance, letting go of the fight against CFS, and focusing on health rather than symptoms. Mara's story highlights the power of a holistic approach to healing, including the use of a structured program, building a support network, and finding joy in small daily activities. Her experience serves as a beacon of hope for others battling CFS, demonstrating that recovery is possible with patience, discipline, and a commitment to self-care.

Takeaways
  • ๐Ÿ˜จ The initial experience of chronic fatigue syndrome (CFS) was described as a nightmare, causing extreme panic and anxiety due to the sudden loss of control over one's body and inability to perform basic tasks.
  • ๐ŸŒŸ Mara's recovery journey involved a significant mindset shift, realizing that fighting the illness was counterproductive and that acceptance and partnership with her body were key to healing.
  • ๐Ÿง˜โ€โ™€๏ธ A crucial turning point in Mara's recovery was learning to accept her condition without resistance, which allowed her to stop fighting and start participating in her own recovery process.
  • ๐Ÿ“ˆ Mara emphasized the importance of establishing a baseline of activity that one can manage without exacerbating symptoms, and the program provided tools to help understand and maintain this baseline.
  • ๐Ÿšถโ€โ™€๏ธ Starting with gentle activities like walking with her dog and gradually increasing activity levels was a strategy that helped Mara rebuild her strength and stamina.
  • ๐Ÿ’ƒ The joy of movement and reconnecting with her love of dance in a non-stressful way was a significant factor in Mara's recovery, allowing her to look forward to and enjoy her progress.
  • ๐Ÿ“ The use of a daily planner was highlighted as a helpful tool for setting intentions and maintaining structure in her day, which contributed to Mara's overall progress.
  • ๐Ÿ”„ Mara discussed the importance of consistency and patience in her recovery, noting that it took time and discipline to build up her health and capacity.
  • ๐Ÿ’ช The transition from being bed-bound to opening her own pole dance studio, Vanilla Sky, is a testament to Mara's resilience and the power of a structured recovery program.
  • ๐ŸŒฑ The interview concluded with Mara's advice for others on their recovery journey: stay curious, be consistent, and believe in the possibility of a full recovery.
Q & A
  • What was the initial experience of Mara when she first got sick with chronic fatigue syndrome?

    -Mara's initial experience was extremely challenging. She described it as a nightmare, with a loss of control over her body, being unable to move or do even simple tasks, which led to extreme panic and anxiety.

  • How did Mara's life change after she was diagnosed with chronic fatigue syndrome?

    -Mara's life changed drastically. She went from being very active and engaged in various interests to being bed-bound, only able to move for short periods, such as walking to the bathroom or getting a small amount of food.

  • What was the turning point for Mara in her recovery journey?

    -The turning point for Mara was when she started to accept her condition and began to work on her beliefs. She joined the CFS Health mentorship program and started to make small, consistent steps towards recovery.

  • How did the CFS Health mentorship program contribute to Mara's recovery?

    -The CFS Health mentorship program provided Mara with a structured approach to recovery, including establishing a baseline, setting daily intentions, and gradually increasing her activity levels in a way that was appropriate for her condition.

  • What was Mara's mindset when she first joined the CFS Health mentorship program?

    -Mara was not skeptical about the program. She understood that recovery would involve a process and work on her part. She was curious about the program and open to seeing what would happen if she followed it.

  • What was the role of acceptance in Mara's recovery process?

    -Acceptance played a crucial role in Mara's recovery. She had to accept her current state, stop fighting her condition, and start working with her body to heal. This acceptance allowed her to reduce panic and fear and begin to regain control over her life.

  • How did Mara's approach to movement change during her recovery?

    -Mara started with very small steps, such as walking to a nearby stone with her dog and gradually increasing her activity. She also incorporated restorative movement and linked it to her ultimate goal of dancing again.

  • What advice would Mara give to others in the CFS Health mentorship program who are struggling with their recovery?

    -Mara advises people to rest in their current state, enjoy the small victories, and not rush the process. She emphasizes the importance of consistency and building trust in the recovery process.

  • How did Mara's life change after her recovery from chronic fatigue syndrome?

    -After her recovery, Mara opened her own pole dance studio called Vanilla Sky, became a recognized name in Berlin, and started teaching and organizing workshops. She also connected with others who had recovered from chronic fatigue syndrome.

  • What is Mara's perspective on life after recovering from chronic fatigue syndrome?

    -Mara acknowledges that while life still has its challenges and stresses, it is a million times better than living with chronic fatigue syndrome. She is happy with her choice to create a life doing what she loves and would not want to go back to her previous state of suffering.

Outlines
00:00
๐Ÿ˜จ Struggling with Chronic Fatigue Syndrome

The speaker, Mara, describes her harrowing experience with Chronic Fatigue Syndrome (CFS), which left her bedridden and in severe pain. She talks about the loss of control over her body and the extreme panic and anxiety that came with her illness. Mara shares her journey from being a very active person to someone who couldn't even move without great difficulty. The narrative introduces Toby Morrison, the founder of CFS Health, who hosts a recovery success story episode featuring Mara's recovery from CFS.

05:02
๐ŸŒฑ From Chaos to Calm: Mara's Recovery Journey

Mara recounts her life before falling ill with CFS, which was filled with stress, anxiety, and a search for identity. She describes her transition from a chaotic period of trying different studies and dealing with mental health issues to discovering dance, which became her passion. However, the stress of building a career in dance and health struggles, including infections and fatigue, exacerbated her condition. Eventually, a vaccination and a series of events led to her body breaking down with CFS.

10:03
๐Ÿ˜” The Dark Days of Chronic Illness

In this paragraph, Mara details the depths of her suffering with CFS. She describes the physical and mental torment, including brain fog, extreme exhaustion, and the inability to perform basic tasks. Mara also discusses the emotional toll, such as the fear of dying and the loss of hope for recovery. She talks about her initial attempts to seek help, which involved going to hospitals and doctors without finding any solutions, and her feelings of isolation during the pandemic.

15:04
๐Ÿ” Searching for a Cure and the Turning Point

Mara shares her initial steps towards recovery, which included researching CFS and finding a community of people who had similar experiences. She talks about her first encounters with the concept of recovery and the initial skepticism she had about various treatments. However, she held onto the hope that there must be someone who has recovered, which led her to search for healing methods. She discovered a program that resonated with her, and although she doesn't detail the program here, it's implied that it played a significant role in her recovery process.

20:06
๐Ÿง˜โ€โ™€๏ธ Embracing Acceptance and the Power of Belief

Mara discusses the importance of acceptance in her recovery process. She shares her realization that fighting against her condition only led to more suffering and that acceptance was the key to healing. She talks about the process of giving up the fight, which allowed her to stop experiencing panic and start gaining a sense of control over her life. This acceptance led her to a new understanding of her body's needs and the importance of listening to them.

25:06
๐ŸŒŸ Transitioning from Helplessness to Hope

The speaker emphasizes the significance of the Baseline concept in her recovery, which helped her understand her limits and build a healthier routine. She also mentions the importance of letting go of perfectionism and the value of having a daily planner to set intentions and track progress. Mara highlights the transition from focusing on symptoms to focusing on health, which was a turning point in her recovery journey.

30:08
๐Ÿšถโ€โ™€๏ธ Incremental Progress and the Role of Movement

Mara talks about the gradual increase in her physical activity, starting with short walks with her dog and slowly building up her strength. She emphasizes the importance of consistency and doing things appropriately without rushing the process. The paragraph also discusses the struggle with wanting to rush recovery and the importance of patience and discipline in the healing process.

35:08
๐ŸŽ‰ Celebrating Milestones and Overcoming Obstacles

In this paragraph, Mara shares her progress from being able to dance for only five minutes a day to teaching dance classes for hours. She talks about the challenges she faced, such as comparing her current self to her past self and dealing with the frustration of recovery. However, she also discusses the importance of finding joy in small victories and the role of community in her recovery, including meeting others in the program who inspired her.

40:09
๐Ÿ’ช The Discipline of Diligence and Embracing Joy

Mara emphasizes the importance of discipline and diligence in her recovery, choosing activities that brought her joy, such as pole dancing, to aid in her healing process. She talks about the need to connect with the activity and enjoy the process of recovery, rather than focusing solely on the end goal. The paragraph also touches on the importance of community support and the role it played in her journey.

45:11
๐ŸŒˆ Finding Success and Freedom After Recovery

Mara shares her incredible transformation after recovering from CFS, opening her own pole dance studio called Vanilla Sky. She talks about the challenges of building a business, dealing with stress, and the pressures of running a studio. However, she also expresses her happiness and satisfaction with her life, choosing to embrace the challenges as part of her journey towards success and freedom.

50:12
๐Ÿ›‘ Overcoming Overwhelm and Choosing Problems to Solve

The speaker discusses the feeling of overwhelm after recovering and opening her studio, dealing with new challenges such as rent, marketing, and managing a team. She talks about the importance of recognizing that life comes with its own set of hardships and that it's essential to choose the problems you want to solve. Mara emphasizes the importance of making choices and taking responsibility for creating the life you want.

55:13
๐Ÿ“ข Message of Hope and Encouragement

In the final paragraph, Mara shares a message of hope and encouragement for those who are currently in the mentorship program and those who are not. She advises people to find structure and routine, let go of symptoms, and focus on what they can do. She also encourages people to commit to a program or a structured guidance that can help them recover and to make choices that will lead to a better life.

Mindmap
Keywords
๐Ÿ’กChronic Fatigue Syndrome (CFS)
Chronic Fatigue Syndrome, also known as ME/CFS, is a complex, long-term illness characterized by extreme fatigue and other symptoms such as brain fog and physical discomfort. In the video, Mara's recovery from CFS is the central theme, illustrating her journey from being severely affected, where she was bedridden and experiencing a significant loss of control over her body, to eventually regaining her health and opening her own pole dance studio.
๐Ÿ’กRecovery
Recovery in this context refers to the process of regaining health and normal functioning after a period of illness. The video emphasizes the importance of a holistic approach to recovery, which includes physical, mental, and emotional aspects. Mara's story is a testament to the possibility of recovery from CFS, as she not only regains her health but also achieves her dream of opening a dance studio.
๐Ÿ’กAcceptance
Acceptance is a crucial step in Mara's recovery process. It involves acknowledging the current state of health without resistance and embracing the journey towards healing. In the video, Mara describes her initial struggle with accepting her condition, which included feelings of panic and fear, and how she eventually reached a point of surrendering to her illness, which allowed her to start participating in her own recovery.
๐Ÿ’กBaseline
The term 'Baseline' in the video refers to establishing a foundation of health by identifying and maintaining a level of activity and rest that the body can consistently manage without exacerbating symptoms. Mara discusses the importance of finding her Baseline and how it helped her understand her limits and gradually build her capacity without causing setbacks in her recovery.
๐Ÿ’กMentorship
Mentorship in this video represents the guidance and support provided by the CFS Health program, which Mara enrolled in to aid her recovery. The mentorship includes a structured approach to healing, with tools like a daily planner and a step-by-step process to help individuals with CFS regain control over their health and life.
๐Ÿ’กMovement Mastery
Movement Mastery is a program mentioned in the video that focuses on restoring physical function and strength in a gradual and sustainable way. Mara used this program to rebuild her physical capacity, starting with very small movements and eventually progressing to being able to dance for hours and teach classes.
๐Ÿ’กConsistency
Consistency is highlighted as a key factor in Mara's recovery. It refers to theๆŒไน‹ไปฅๆ’็š„่กŒๅŠจๅ’Œไน ๆƒฏ๏ผŒwhich she developed over time to manage her health effectively. The video discusses how Mara built up her activity levels consistently, ensuring that she did not rush or overexert herself, leading to a steady improvement in her condition.
๐Ÿ’กJoy
Joy is an essential element in the recovery process discussed in the video. It represents the importance of finding happiness and pleasure in daily activities, even small ones like enjoying a cup of decaffeinated coffee, which Mara mentions as a source of happiness during her recovery. This focus on joy helps to maintain a positive outlook and engagement in life despite the challenges of illness.
๐Ÿ’กOverwhelm
Overwhelm is a feeling of being overwhelmed by the challenges and responsibilities that come with recovery and life in general. In the video, Mara talks about experiencing overwhelm when she opened her dance studio, dealing with the pressures of running a business, and managing her personal life. It is a reminder that even after recovering from CFS, life presents new challenges that require adaptation and resilience.
๐Ÿ’กChoice
Choice is a central theme in the video, emphasizing the importance of making deliberate decisions about one's health, life direction, and goals. After recovering from CFS, Mara had to make choices about what she wanted to do with her life, leading her to open her own pole dance studio. The video encourages viewers to recognize the power of choice in shaping their lives and overcoming adversity.
Highlights

Mara's experience with chronic fatigue syndrome (CFS) was like a complete nightmare, causing extreme panic and anxiety due to the loss of control over her body.

Toby Morrison, the founder of CFS Health, interviews Mara about her recovery journey from CFS.

Mara describes her transition from a very active lifestyle to being bedridden, unable to even move 10 steps.

Mara's recovery included accepting her condition and working on her beliefs, which was a turning point in her healing process.

The importance of finding a holistic approach to recovery rather than seeking a quick fix or passive treatment.

Mara's realization that she needed to participate in her own recovery and listen to her body's needs.

The significance of setting daily intentions and having a structured routine as part of the recovery process.

Mara's struggle with brain fog and cognitive issues during her darkest period with CFS.

How Mara's mindset shift from fighting the illness to working with her body led to improvements in her condition.

The role of patience and consistency in Mara's gradual recovery, including her movement from bed to light activities.

Mara's advice on finding joy in small activities and not rushing the recovery process.

The impact of the CFS Health mentorship program on Mara's recovery, providing structure, guidance, and community.

Mara's ultimate goal of dancing again and how she worked towards it step by step.

The importance of connecting with others on the same journey and the power of shared experiences in recovery.

Mara's transition from a lifeๅ—้™ by CFS to opening her own pole dance studio, Vanilla Sky, in Berlin.

Mara's reflections on the challenges of running a business and the reality of life after recovery, emphasizing the importance of choice and problem-solving.

Mara's message of hope to others in the mentorship program, encouraging them to stay consistent and curious about their recovery journey.

Advice for those not in the program yet, emphasizing the need for structure, routine, and focusing on what can be done rather than what is lost.

Transcripts
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